The foundation
A family that refused to sit aside.
“Nothing about our family is special, not one thing. We are as average as they come. But we refused to sit aside and let a disease ravage children.”
Our mission
To bring hope through the gospel, raise awareness and funds for better treatment for NKH, and care for special needs families.
Tarah O’Sullivan · Founder & CEO
Mom of five. After Drake’s diagnosis, Tarah went back to school to study biochemistry so she could understand NKH, and she has spoken at national rare-disease research conferences. She writes every update the family shares.
Eric O’Sullivan · CFO & Director
Dad of five and a financial advisor in the Greenville–Spartanburg area. Eric takes the night shift, rides in the ambulance and sleeps within arm’s reach of Vivian on the hard nights.
Ryanne O’Sullivan · Director
Board member since 2017.
Reach the foundation at [email protected]
2607 Woodruff Road, Suite E, PMB 352
Simpsonville, SC 29681