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A share is a gift you can give right now.
You don’t need a big following. One post from a local weatherman brought in more than $20,000 in a week, and you never know whose feed you’re on.
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Meet Drake (10) and Vivian (7). Both were born with NKH, a rare genetic disease with no approved treatment. Doctors sent Drake home on hospice at one month old. He's still here.
Right now a one-dose gene therapy is being manufactured for them, and a first-of-its-kind trial is planned at MUSC. The trial needs $1.6 million. They're down to the final inches.
Can you give $25, or just share this? Every dollar counts, and so does every new person who hears their story.
https://drf.refitsite.com/
#SavingDrakeAndVivian #CureNKH #HeIsEnough
Instagram / caption
Two kids. One dose. The final inches. 💛
Drake and Vivian both have NKH. A one-dose gene therapy trial is almost fully funded. Every $1,000 covers one inch of the gap.
Link in bio → drakeraydenfoundation.com
#SavingDrakeAndVivian #CureNKH #HeIsEnough #raredisease #genetherapy
Text message
Hey, a family near us has two kids with a rare disease called NKH. A gene therapy trial for them is almost funded. Would you read their story? Even $25 helps, and so does sharing it. https://drf.refitsite.com/
X / Threads
Drake (10) and Vivian (7) have NKH, with no approved treatment. A one-dose gene therapy trial is ~85% funded. Help close the gap: https://drf.refitsite.com/ #SavingDrakeAndVivian #CureNKH #HeIsEnough
Make it personal
Say why you care.
The posts that move people most start with “I.” Are you a parent? Did you pray for them in 2016? Did you play in the Drake Rayden Cup? Say so, then tag a few friends by name.
- Tag @DrakeRaydenFoundation on Facebook so the family sees it.
- Use #SavingDrakeAndVivian #CureNKH #HeIsEnough.
- Share an update post from the family’s page, and add one line of your own.
- Post the live meter on its own: “Look how close they are.”

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