NKH takes a lot, but it hasn't taken joy from the O'Sullivan home. For years, Drake's seizures made it impossible to know whether he was smiling. Then, in 2023, he smiled for real. It happened during a game the family invented after watching his brother's baseball games: everyone takes turns "running" Drake's legs around the bases and cheering. When he's really tickled, he smiles big enough to show his teeth.
That same year, during a family photo in Charleston, the family noticed Drake pursing his lips every time they said "cheese." He was saying it with them. In 2024, he had a breakthrough with an eye-gaze device that helps him communicate.
Vivian, whose name means "lively," loves the taste of orange juice so much that, even on hard days, she'll work to drink from her bottle when it's orange juice. Her 5th birthday had a "cutie oranges" theme. Both children light up when their big sister Birkley reads to them.
Joy is a big part of why the family fights so hard. Tarah once wrote: "The devil doesn't want Drake….he wants our joy." Help protect it. Give toward the trial or share their story.
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