July 20, 2022, is a day the O'Sullivan family will never forget. Drake, then five, went into cardiac arrest. Medical teams worked for nearly 40 minutes before his heart started again. His family and many of his caregivers did not know whether he would survive.
He did. Within about a week he was breathing on his own again, and he came home weeks later. His family calls it a medical miracle, and Tarah has written about it as a turning point in their faith: "…this has always been Drake and God's story....I am just in charge of taking notes and making God known throughout the journey."
The arrest left lasting effects, including a spinal cord injury and severe scoliosis, and his care became even more complex. Yet the following year brought something new: Drake's first real smile that wasn't caused by a seizure, and a sweet way of saying "cheese" for family photos.
Drake's survival is part of why his family is fighting so hard for what comes next. Read the rest of his story, or help him get to the gene therapy trial.
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